A rare condition meant that my baby was born twice

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A rare condition meant that my baby was born twice
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'Having my baby operated on while I was still pregnant sounded terrifying – but we had to try.' | ✍️ Deborah Middleton

‘You want to operate while he’s still in my womb?’ I asked incredulously.

That’s because prenatal tests at the time revealed that our little one had a severe form of spina bifida and this operation would give him his best chance of living a normal life. I couldn’t believe it when he told me his birthday was Christmas Day; we even joked about Christmas being doubly expensive for me if things got serious.We’d been trying for a baby for two-and-a-half years when I finally fell pregnant six months after our September 2019 wedding.

We could choose to go ahead with the pregnancy and hope surgery after birth might improve our child’s quality of life. Or our third option was the foetal surgery to operate on our baby while he was still in my womb, which we went for in the end.By this point, we’d already named our baby Preston – we’d had it picked out for a boy since we started trying.

I stayed in hospital in Belgium for a week and felt very sore – Preston was kicking against my stitches. The epidural also affected a nerve in my leg.

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