“The powers of hope and community propelled me forward and got me across every single finish line.”
, but the physical therapist I went to said, “your muscles just don’t seem strong enough for someone who just did that long of a race.” She referred me to a neurologist.My blood tests, MRIs, spinal tap, CT, and first electromyography all came back normal, but my symptoms kept getting worse. In just six months, I went from finishing the 70.3 to walking with a cane after falling in the middle of a D.C. intersection.
ALS is a death sentence—the average life expectancy is only two to five years. In that time, the person loses the ability to walk, talk, eat, move, and eventually breathe. The only approved drugs extend life expectancy by less than a year.
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