An expert outlines how the heartbreaking disease, which is the most prevalent form of dementia in patients under age 60, can be detected and treated.
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“Mild impairment of affects day to day things like managing correspondence and finances, public transport, being able to get up have a job,” Dr. Salinas says. “Once somebody advances into the moderate stage, we see more dependence in the basic activities of daily living: showering, dressing, toileting, and difficulty with eating. Then once somebody’s very dependent on just about everything, that would be severe.
In their family statement, the Willises said there were no treatments for the disease, though Dr. Salinas says doctors work with patients depending on their symptoms. They would connect a patient with speech and cognitive therapists to help a patient’s communication and, in some cases, prescribe medications like antipsychotics for people in severe distress if necessary. But Dr. Salinas affirms, “There are no cures for the condition.” Ultimately, doctors are still learning about the disease.
The lack of available research is a result of a lack of awareness for the disease. “Not many people know about it, despite it being the most common form of dementia under age 60,” Dr. Salinas says. “And people who are affected by it aren’t often able to advocate for themselves, so you don’t see as many people speaking to Congress, for example, to demand more research.” Specifically, Dr.
Another issue that patients diagnosed with FTD face is a lack of specialists to treat them. “There aren’t very many behavioral neurologists in the country,” Dr. Salinas says. “There are some estimates of about like, 370 behavioral neurologists.
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