Bruce Willis' wife Emma is opening up about how isolating being a caregiver for someone with dementia can be and why she recently asked photographers to leave her husband alone.
"I guess if you're not living it or know it, you don't understand it," she suggested.
The lack of knowledge, in her opinion, stems from not many people talking about their experiences as caregivers and how certain situations can act as triggers. "If you could take a look into my messages and my direct messages, honest to God, you would think the whole world has dementia," Emma shared."So many people now are coming to me and telling me, and I even have friends now, ‘You know, my grandmother, or my so-and-so had it,’ and I'm like, 'Why didn't I know?' We're not talking about it."
Emma admitted it was hard even for her to open up about her husband's diagnosis when she first learned about it, saying,"It is so isolating." "I did that to myself for a while of just holing up, and my friendship circle became smaller because it was also very difficult to talk about," she revealed. Bruce Willis' family announced in a statement released in February that he was diagnosed with frontotemporal dementia.
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