Orla Haugh says she felt like she was 'hit by a bus' after being given the news that Ellen had a rare hereditary condition
A mum was left heartbroken after doctors informed her that her "bubbly" baby daughter had just one month to live. Orla Haugh says she felt like she was "hit by a bus" after being given the harrowing verdict regarding her little girl, Ellen, reports Belfast Live.
Doctors then informed the parents that Ellen would likely pass away within a month. Their darling daughter passed away in September 2022 at just seven months old. Her mother says the news was excruciating, as just hours earlier she had been laughing and having fun with Ellen while they made their way to the hospital.
"We discovered that she has a form of Gaucher Disease, which is a hereditary condition that effects her nervous system, liver and other organs, and means she cannot process fats properly. It is an extremely rare disease and came from me and Andrew both having a gene that would give any of our children a one in four chance of developing the condition.
As part of their efforts to raise awareness, her husband and her brother are going to be running the Belfast Marathon. Andrew is wearing a 10Kg weighted vest in memory of his daughter, who would have roughly weighed that if she was still alive.
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