Controversy Over Australia's Group Homes for Disabled Residents

Health And Social Issues News

Controversy Over Australia's Group Homes for Disabled Residents
Disability Rights, NDIS, Royal Commission

The article explores the divide between positive living experiences in NDIS-funded group homes and the systemic abuse highlighted by the Royal Commission, leading calls to phase out this dominant housing model in favor of supported independent living.

NAS CAMPANELLA, REPORTER: In a quiet suburban home in outer Melbourne, Jason Toppin has put down roots. NAS CAMPANELLA: He’s lived here with the same flat mates for almost twelve years.

JASON TOPPIN: This place means a lot to me. It's a part of me that no one can ever take away. I do cleaning kitchen in the morning. Set table and load dishwasher.

NAS CAMPANELLA: The 47-year-old lives with a vision impairment and intellectual disability, His house mates are of similar age and have similar disabilities. The home run by Saint John of God Accord is funded through each resident’s National Disability Insurance Scheme plan. It’s given them more than just a roof over their heads. JASON TOPPIN: The loungeroom I sit here with the guys.

And I watch the telly. It's very warming, family-like and the staff do a good job here. NAS CAMPANELLA: Homes like this have become the dominant housing option in Australia for people like Jason but not every group home is as happy as this one. During its four-year inquiry, the disability royal commission scrutinised residents experiences in group homes hearing stories of abuse, violence and neglect.

ROYAL COMMISSION WITNESS: My daughter lives her whole life in fear of being punished because she’s had so much of it. ROYAL COMMISSION WITNESS: When she lived in the group home she had bones broken, skin torn, money stolen, multiple physical abuses. NAS CAMPANELLA: In their final report, four of the six commissioners called for group homes to be phased out.

JESSICA WALKER, SUMMER FOUNDATION: Group homes in many respects have been the default option and what we need to see is a growing of alternative options so people have choice about how they live and where they live. NAS CAMPANELLA: Assistance in groups homes is known within the NDIS as supported independent living costs the scheme $16.6 billion a year.

JESSICA WALKER: There are people currently living in group homes that could be living more in the community and could be living more cost effectively for the government as well. OP SHOP WORKER: Shall we use the little hangers? NAS CAMPANELLA: She volunteers at her local opshop and has an active social life. NAS CAMPANELLA: And values making her own choices.

NAS CAMPANELLA: That includes choosing where she lives and who she lives with. NAS CAMPANELLA: This is known as an individualised living arrangement where the NDIS makes it possible for someone with mild to moderate disability to live independently by setting them up with a flatmate. NAS CAMPANELLA: Meghan received funding from the NDIS for support with daily tasks. Isabel’s role is different: she’s not a support worker.

Her rent is subsidised, in exchange for companionship, having someone in the house overnight and informal guidance such as prompts with daily tasks. NEIGHBOUR: Hi Megs, what are you doing? NAS CAMPANELLA: The people Meghan now knows in the community check in on her and help her live an independent life. NAS CAMPANELLA: Meghan’s service provider says the average annual cost of the 21 homes they oversee is less than $170,000.

Despite the cost benefit of the arrangement the NDIS has funded fewer and fewer people to take up individualised living options. Two years ago the NDIS approved more than 1600 participants exploring this living option. Last quarter that number was only 338. Advocates say because the rates paid for these services have not kept pace with inflation demand has fallen.

COURT WATERS, MILPARINKA: We'd like to see the agency carve out a place for these kind of arrangements to grow and to be recognized as a cost-effective and really beneficial arrangement for participants. SAM BENNETT, GRATTAN INSTITUTE: It would be very possible I think to both deliver better outcomes for disabled Australians, to deliver a more diverse range of options that people can choose from at various life stages but also to do that in a way where the costs are predictable, affordable and potentially cheaper than they are at the moment for government.

MARK BUTLER, NDIS MINISTER: The central philosophy here is choice and control and that as much as anything should include living options. NAS CAMPANELLA: The government recently asked the community for their suggestions on how to improve housing services but made no mention of alternatives to group homes. MARK BUTLER: Look, I don’t want to pre-empt that. I imagine that was a very significant theme of the consultation.

CHRISTINE BIGBY, LA TROBE UNIVERSITY: It was not the model of housing. It is quality of everyday support that makes the most difference to people’s lives. The Brisbane not-for-profit offers a drop-in and on-call support service, billed in 15 minute increments. ALISON HERRING, MOBILE ATTENDANT CARE SERVICE: The flexibility is life-changing for our customers.

They really appreciate the short duration, bite-sized supports that they can receive from us rather than having to have people in their house for longer periods of time than they need. ANDY: Hello Andy from MACS speaking. NAS CAMPANELLA: Or schedule a regular service as long as it’s not for more than one hour. NAS CAMPANELLA: Katie Fergusson recently graduated with a Masters degree.

Something she couldn’t do without flexibility. KATIE FERGUSSON, CLIENT: I go to bed somewhere between 11 and one. The reason for that is because my classes at university never finished before 10 o'clock. NAS CAMPANELLA: For assistance into bed and unscheduled support during the night, Katie pays just over $50,000 annually from her NDIS plan.

ALISON HERRING: Our support model stretches the funding a lot further. We're able to bill the customers for the time of support that they're receiving, which makes it much more cost-effective for them. CHRISTINE BIGBY: There is some evidence about alternatives for people who don’t need 24 hour support, people with mild intellectual disabilities but not for people with more profound disabilities. NAS CAMPANELLA: The mobile service is soon expanding to the Gold Coast.

It wants to see similar services made available across the country so people with disability have more choice in how they live. MEGHAN KINE: I like this house better than a home. I want to go to a walk and chat to next door. I like going swim with my friend Gus and take me to the netball, everything.

As the government looks to rein in the cost of the National Disability Insurance Scheme, housing and support services provided in people's homes are under review.

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Disability Rights NDIS Royal Commission Group Homes Social Care

 

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