Dad who heard words no parent wants to hear shares story of utter tragic loss

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Dad who heard words no parent wants to hear shares story of utter tragic loss
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'It’s one thing to hear your child’s got cancer, but to hear they’ve relapsed is just horrendous. Although I don’t think it was ever said, we knew that relapse was pretty much terminal' | ✍️ Mike Shaw

We talk about our daughter all the time at home. Her other two siblings, who weren’t born when we lost her, know everything about her. They know her quirks and her funny sides. They know the same little girl Liz, Jamie and I do., the charity set up after our daughter relapsed in 2005 and a group of mothers from the local community arranged an amazing event to raise money for neuroblastoma research. Even though our little girl passed away, the charity lives on.

We’ve raised over £700,000 to date – through marathon runners and cyclists, school mufti days, golf days, treasure hunts. Most of this has been used to support the amazing work of Professor Louis Chesler and his team at the Institute of Cancer Research , and we are so pleased with everything they’re achieving.

Our support has enabled them to make huge progress in developing blood-based testing for children with cancer. This technology allows clinicians to understand the genetic variants in each child’s cancer, and it allows them to choose the treatment options that are most likely to work. It also helps to discover when a child has relapsed, before symptoms start to show.

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