'It was one of the grimmest conversations I have ever had - the team had to tell us there was nothing left that they could do. My legs just gave away.'
A devastated Scots dad has spoken of how he lost invaluable time with his son who had terminal cancer while he tried to a find a cure after the NHS could only offer end-of-life care.
The dad-of-two said: "You normally get misdiagnosed with brain tumours which happened to Rudi. He was misdiagnosed in April 2020 he started to sleep through the day and had headaches all the time. "After that, it was a wait-and-see game. It's adult chemotherapy administered to kids so you can imagine how that affects them. The recovery from it was unbelievably slow but he battered through the sessions and was back to school which he loved."
Ben had a meeting at Sick Kids to discuss Rudi's results, at which point medics explained that they had run out of treatment options. The dad praised the incredible work of NHS staff in their efforts to save his son, and believes that not having better access to treatment is due to a lack of funding and research into childhood cancer in the UK.
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