'I'm working very hard every second to stay alive, but it's increasingly difficult' Bedbound woman can only stare at ceiling
"I'm working very hard every second to stay alive, but it's increasingly difficult."A genetic condition means ligaments in her neck cannot support her head and she now spends every day staring up at the same patch of ceiling.
One of them is on hand at all times and they never leave their house together in case Jenny needs help. Jenny had been an active, sporty schoolgirl and teenager and was throwing herself into life at university when she first became ill in 2004. It can lead to overly flexible joints, skin conditions and, in rare cases such as Jenny's, fragile blood vessels.
"Various sections of my neck feel like they're being pulled apart in different directions," she wrote"I have to spend 18 hours a day straining to hold my neck and head in a certain position."Instead, they have pinned their hopes on a specialist neurosurgeon in the US, believed to be only one of a handful in the world who understand Jenny's condition.
Australia Latest News, Australia Headlines
Similar News:You can also read news stories similar to this one that we have collected from other news sources.
Ben Affleck finishes a cigarette before picking up his son SamuelBen Affleck finished a cigarette and a canned beverage before picking up his son Samuel from school in Santa Monica.
Read more »
Julia Bradbury flooded with support as she bids farewell after 'last Zoom with doctors'JULIA BRADBURY has opted to take the weekend off from staring at a screen as she bids farewell to her Twitter followers for a few days amid her cancer battle.
Read more »
The Powerful New BBC Drama ‘Then Barbara Met Alan’ Is Shifting The Needle On Disability RightsVogue meets its remarkable stars, Ruth_Madeley and Arthur_Hughes1.
Read more »
Lawyer fined £45,000 for telling interview candidate 'mmm, I like what I see'The head of a law firm who told a job candidate he was interviewing ‘mmm, I like what I see’ has been ordered to pay almost £45,000.
Read more »