Biobank urged to review transfer of information for medical research
Since 2012, approved researchers from around the world have been able to pay £3,000 to £9,000 for access to datasets, including questionnaires and physical measurements; linked health records; and whole genome sequence data. The resulting research has produced key insights into diseases including cancer and heart disease, as well as crucial data on Covid-19.
Guidance from the UK’s Centre for the Protection of National Infrastructure, published in March, meanwhile, warned that China’s National Intelligence Law – which allows intelligence agencies to force businesses and individuals to hand over data and assets on request – could “affect the level of control” UK researchers have over information shared with Chinese universities.
Many of the studies using Biobank data were paid for by the Chinese state-funded National Natural Science Foundation, which aims to “promote progress in science and technology” and “the harmonious socio-economic development of the nation”.The UK Biobank said it shared data with researchers from more than 100 countries under its “equitable, transparent and non-discriminatory” open-access policy, and that it was no surprise researchers from China were included in this.
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