I Didn’t Find Out I Had Epilepsy Until I Was 28, But I’ve Likely Had It My Whole Life

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I Didn’t Find Out I Had Epilepsy Until I Was 28, But I’ve Likely Had It My Whole Life
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Finding the joy in life and fostering her creative side helped Stephanie come to terms with her epilepsy diagnosis and continue to stay strong for her children. She shares her story — and positivity — with us.

It happened while I was sleeping. I woke up to my then-husband, Duane, sobbing over me in bed. I snapped back into consciousness.“You were having a seizure!” he cried.

She was mostly concerned with how the baby was doing. She checked for a heartbeat, which was strong, told me I hadThe anti-seizure medication worked for a while. But soon the seizures returned. I was a stay-at-home mom and had always devoted myself to caring for my son. But now I needed my own caregiver because I was having multiple seizures a day.

It was tough for me to get by during those bedridden months. The gloom and sadness was as thick as smog. To push through it, I relied on the love for my son, my relationship with God, and making art, which is my profession. I am For me, an epilepsy aura is like a very bad, ominous feeling that takes root in the pit of my stomach and then branches out over my entire being. It can happen anywhere and at any time, but the violent episodes — the grand mal seizures — still occur at night, typically when I am already asleep.It’s been six years since my daughter was born, and my epilepsy remains a force to be reckoned with. I also get horrendous migraine attacks that last weeks at a time.

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