When my husband died I was jolted by how much judgment and disrespect is shown full-time carers of children with disabilities
‘I believe I have something quite special to bring to an organisation, so it is very disheartening that I am struggling to find paid work.’‘I believe I have something quite special to bring to an organisation, so it is very disheartening that I am struggling to find paid work.
In 2015 my husband died suddenly of a heart attack and as well as coping with this immense grief I had to step up as the sole provider and carer for our children aged five, eight and nine. My children needed extra support as the previously well managed ASD diagnosis became increasing complex. It was difficult trying to manage exacerbated behaviours flared by the traumatic witnessing of their father’s sudden death.
I constantly had to prove our eligibility for services and support in the social security system. I was moved from the parenting payment to the much lower Newstart when my youngest turned eight, like she suddenly didn’t need me around any more after school. Then, due to the immense challenges with mutual obligation, I had to navigate my way onto the carers payment to avoid having to continue to “prove my need” for some support.
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