In Australia, the average survival time after diagnosis is two and a half years.
“Good, thanks” is the response often given by those with a chronic illness or disability when asked how they are – despite this being far from their reality. This series looks behind the masks of those living with chronic illness and takes you into their world.
MND is a debilitating condition that stops the brain from sending vital messages to the rest of the body to tell it to talk, walk, swallow and breathe. MND is terminal and the average survival time after diagnosis in Australia is“Four weeks before , I was cutting up watermelon for the kids to eat, and now I can’t cut,” says Vulin. “I’m soon going to be at a point where I can’t do things like my make-up or shave my legs. I don’t know how long it will be until I need a personal carer.
Emma never imagined she’d be relying on her kids at this point in her life to help with everyday tasks, but says they have taken on their new role with gravitas. “I think one of the hardest parts is sometimes wanting to have a really massive cry and realising that’s probably not the best thing for my kids.”
“It changed me. That was when I said, ‘you have to do everything you can because life is short’.” And now, in the face of a terminal illness, Emma has doubled down on what’s important in life.
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