There are no coordinators to help people navigate a system designed for occasional care, rather than for chronic illness
‘My Covid safety plan disintegrated, and I couldn’t get access to telehealth or my regular medication. All those carefully made plans, gone in a moment.’‘My Covid safety plan disintegrated, and I couldn’t get access to telehealth or my regular medication. All those carefully made plans, gone in a moment.’Last modified on Wed 24 Aug 2022 02.55 BST
I have been lucky enough to have had a really great GP for the last few years. She is kind, funny, curious and non-judgmental, and works so, so hard. She and I have managed my complex and administratively tough healthcare through a number of crises, and then the pandemic.My GP has acted as the linchpin for my care as I visit an ever-increasing number of expensive specialists who don’t listen, don’t talk to each other, and aren’t interested in my ongoing healthcare.
During the pandemic, she knew I was both more likely to get Covid and at high risk if I was infected. She helped me work through ever-changing information and make good decisions about what I could and couldn’t do. The 2021 census asked about chronic illness for the first time and found there are millions of us with one or more serious long-term illnesses. My experience isn’t unusual or uncommon, yet there’s little recognition of that in the funding or structures of our healthcare system.
This isn’t my GP’s fault or even the medical practice, although I am pretty upset with them. I understand the crisis they are in, but that crisis is one for me as well, and many other sick and disabled people. Where are our voices in this discussion?
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