‘The hospice is a happy place which is sad at times, but there is laughter, there is joy for our patients and their families.' We met with hospice nurses to discuss what end of life care really looks like 👇
and complex lockdown restrictions, my sister and I spent those blurred weeks at dad’s bedside, clinging to his hand, praying for a miracle. We barely made it to the end of each day.
It costs £2.9 million per year to run Bury Hospice, which breaks down to £7,958 per day – but they only receive 23% of its funding from the government. The rest, they are forced to fundraise to bridge the funding gap. If death and taxes are life’s two guarantees, surely we must use the latter to help improve the conditions of the former.
‘The hospice is a happy place which is sad at times, but there is laughter, there is joy for our patients and their families,’ Karen tells Metro.co.uk. Karen has been a palliative care nurse for 12 years, she says she certainly isn’t in it for the money. ‘The hospice felt like this magical alternative space, a place where we knew he was being cared for, where we didn’t have to worry that he was on his own if we weren’t by his side every second.’
Donna adds that the hospice removed a lot of the admin and the stress that would have occurred if they had been caring for her dad at home. ‘In order to pay the salaries of our doctors and nurses who provide expert care, pain and symptom management to people at the end of their lives, we rely on people buying second hand clothes from our charity shops or running a marathon and asking their friends and family for sponsorship,’ says Heidi Travis, chief executive at Sue Ryder. ‘It is unfathomable that such a critical part of our healthcare system is hanging by a thread.
So, where is palliative care on the government’s agenda? You’ll have to search pretty hard to find it. In response, a government spokesperson said: ‘No national government can control the global factors pushing up the price of energy, but we will continue to support businesses, including hospices, in navigating the months ahead.
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