The mother-of-two had been getting ready for her day in 2008 when her vision just went “totally black”.
The mother-of-two, from Point Cook in Victoria, had been getting ready for the day in October 2008 when her vision went “totally black”.After initially hoping the problem would fix itself but didn’t, the next day Mrs Lentini went to her GP, who referred her to an eye specialist.
“I had been just going along normally. My kids were in high school, my eldest son at the time was in year 12, my daughter was doing year 10,” she said.Being diagnosed with MS in 2008 came as a shock for Maria Lentini and her husband Pasquale . Picture: Supplied.MS is typically diagnosed after a person experiences a sudden appearance of MS symptoms, such as vision impairment or numbness, which last more than 24 hours.
Treatment options for secondary progressive MS have been limited until November when the first oral drug to treat it was approved by the Therapeutic Goods Administration. “But for many people, that dose treatment would have been stopped because we are required by the PBS to stop treatment if people become secondary progressive MS … it would have meant that their medication would have been stopped and there would have been no treatment option.”
More than 10 years on from first being diagnosed, Mrs Lentini is yet to have another severe episode but struggles with lethargy and loss of movement down one side of her body.Since being diagnosed, Mrs Lentini said she no longer puts things like big trips overseas off.“With me, particularly, MS and heat don’t go together. I won’t go out somewhere that doesn’t have airconditioning because I that know if I do I risk having a relapse caused by the heat,” she said.
“My husband is the best house husband you could find. He does the vacuuming, he does the washing up.”
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