Carli’s jaw 'locked' when she was seven years old, and years later, after various accidental falls, she lost mobility in her left knee and hip, leaving her unable to walk
A rare genetic disorder has left a woman 'growing a second skeleton', as her 'back is a sheet of bone' and her jaw is 'locked'.
She has many hopes for the future, including starting a family via surrogacy or adoption and finding her 'forever home' with a swimming pool, as it is 'so helpful for the body', and she wants to inspire others with FOP to 'chase their dreams' and 'focus on the positives'. She continued: “While my life will always be focused on my health, my goals are to start a family, get us into our forever home with a pool, and then grow my own brand.”
Without this procedure, Carli said she would be on a liquid diet, which 'would be miserable', as one of her favourite meals is Froot Loops with marshmallows. “With my disease, I can’t control a lot of things, but I can control what I eat,” she said. After Ralph sadly died of cancer in March 2014, she then met her second service dog Patience in May 2015, and she has helped to boost Carli’s confidence significantly.
After leaving college, Carli moved in with her long-term boyfriend of 10 years, Billy Schmitt, 27, who works in IT, and they made numerous adaptations to their home to ensure it is safe, including making the bathroom accessible and adding a lift to the back of the property.
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