'Mummy asked for professional help so many times because his episodes could be dangerous and she needed another adult in the house, but she was ignored.' | ✍ Sam Carlisle
Sammy’s sisters are sharing his story to raise awareness about the support needed for families like theirs
Here Sammy’s sisters – Hazel, 14, Poppy, 12, and Holly, 12 – pay tribute to their brother and explain why families must be heard: Most of the time he was kind, creative and funny. But if things went wrong or his routine changed, he could go from nought to ballistic in seconds.Sometimes it was because something had disturbed him or because he couldn’t find something. He would become suddenly different, like someone else was in his body.
The police were called over 29 times in total. Each time they came, they said they would ask our council to organise professional help for Mummy. They could see we needed it. Sometimes he would have an episode in our car and try to grab the steering wheel or open the door when we were going fast. That was terrifying.We never really spoke about our brother to our friends, it would be hard for them to understand. Even some of the people in our family didn’t understand what it was like.
He was out of school for a very long time because a place hadn’t been found that suited him, that wasn’t fair on him. He used to cry a lot about it. Eventually he went to a special school. He was always proud and protective of us. If one of us was sad, he would notice and give us cuddles. He used to inflate the tyres on our bikes when they went flat. He made Mummy presents all the time, like sewing dinosaur-shaped toys or beautiful bags.
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