Vienna was diagnosed with Primary Ovarian Insufficiency (POI) at 19. But the lack of awareness about the rare condition is causing severe delays in diagnosis, putting young women's lives at risk.
Vienna sat quietly holding back tears as her mother Belinda spoke at a parliamentary inquiry into menopause and perimenopause.
It's estimated only 5 per cent of people with the condition can conceive using their own eggs, and carry a pregnancy, according to theVienna's late diagnosis ruled out the chance of conceiving a child using her biological eggs and now she would need to use donor eggs."We definitely missed the window for puberty development. Hormone treatment needs to start before the age of 17 for that and the delay had a big impact," Belinda said about her daughter's diagnosis.
In her submission to the Senate inquiry, she said 13 of Vienna's symptoms matched 15 for early menopause, but Veinna's GP didn't test her for it.Despite not having a regular menstrual cycle, and dozens of consultations with her GP, Vienna's POI had been mistaken for chronic fatigue syndrome, anxiety and depression.
He said POI is a deficiency of the essential ovarian hormone 17 beta-estradiol, a hormone that induced puberty in girls. Dr Nelson said those with the deficiency were at a higher risk of cardiovascular disease, osteoporosis, and a shortened life expectancy. Fortunately, Georgia used her wife, Grace's donor egg, and she's now pregnant with their first child.
Premature Ovarian Insufficiency POI Menopause Before 40 Senate Inquiry Women's Health Infertility IVF Menopause Early Menopause
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