GRAPHIC IMAGE WARNING: Katie Hogan, from Dundee, has been diagnosed with granulomatosis with polyangiitis (GPA) which leaves her having to remove 10p sized pieces of cartilage from her nose.
A Scots mum has been left ‘screaming in agony’ as she’s forced to pull large lumps of cartilage out her nose several times a day. Katie Hogan, from Dundee, suffers from an extremely rare condition called granulomatosis with polyangiitis which took more than a year to diagnose.
Describing her daily experience for the past six months, Katie said: “Bits of cartilage just started falling out of my nose. “Like you’re talking the size of 10 pence pieces. Every couple of hours, I’m at the sink trying to get it out my nose. It’s awful. She eventually went to see a GP who suggested she was suffering from sinusitis and prescribed her with nasal spray. Over the next year, Katie’s airways did not clear up and she returned to see a doctor several times, but she said she was repeatedly given the same answer.
“This was all such a slow, slow process – it took months and months,” she said. The biopsy revealed that the “mess” in Katie’s nose was in fact GPA. “So you’re talking about a year and a half before I got the diagnosis,” she said. The left side of her nose eventually collapsed after Katie’s septum, the thin piece of cartilage separating the right and left nostril, gave way. “Now I’ve got no septum at all, so if I put nasal drops up my nostril it just comes out the other nostril, like it just goes straight through.”
Katie thought there was light at the end of the tunnel when doctors diagnosed her with a similar, but even rarer, autoimmune disease called Eosinophilic granulomatosis with polyangiitis earlier this year and suggested a new treatment, taken by injection every two to three weeks. Katie’s friends have set up a GoFundMe to help pay for specialist treatment and have so far managed to raise more than £11,000 of their £20,000 target.A spokesperson for NHS Tayside said: “Due to patient confidentiality we are unable to comment on matters relating to individual cases. We would invite Ms Hogan to contact her consultant with any concerns she has about her care and treatment.
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