For people diagnosed with motor neurone disease, one year — or even one day — can be the difference between $50,000 and $500,000 in funding.
For people with motor neurone disease who need care, equipment and home modifications, one day can mean the difference between $50,000 or $500,000 in funding each year.
When he is moved from his specially designed armchair, he experiences an excruciating burning sensation."If I could move my hands, I'd slap my forehead and say, 'Sh [s**t] … shellgrip!"An armchair, which he spends between seven and 10 hours a day sitting in, was one of several things he could not get funded through his $54,000-a-year care plan.
"The needs of people under and over 65 with MND are the same," Ms Johnson said. "It's an arbitrary cut-off, that at 65, you can't access the support through the NDIS and you're forced to go through government-funded aged care," she said.
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