Health experts want greater education about a debilitating syndrome which leaves patients, particularly women, facing a fight getting recognition and diagnosis.
Bethany Wormald was so unwell that she was spending 23 hours a day lying down. Enduring massive heart palpitations, on her worst days, the furthest she could walk was to the next room. When she had to travel further, she would grip onto the wall.
Some of the symptoms of POTS are fatigue, dizziness , fainting, brain fog, heart palpitations and headaches.“That still exists in the mind and practice of a lot of doctors, and a lot of the time unconsciously … They don’t know the data, they don’t know that women are being denied care.” The Australian POTS Foundation is calling for government funding to educate GPs to improve their understanding of the condition, which some research has suggested is a common cause of what is otherwiseSeeley has also asked for medications that can be used by POTS patients, Midodrine and Ivabradine , to be subsidised for POTS patients.
Dr Nicole Higgins, the president of the Royal Australian College of General Practitioners, said awareness of POTS had significantly improved among the medical community. The condition is part of current medical and GP training. Bethany Wormald said that when she visited the Sydney specialist, he had muttered under his breath that she had a “phobia of exertion”.
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