The condition drastically alters her personality and temporarily shuts down her life. The diagnosis brought relief but also uncertainty.
But scans of Erin’s brain, abdomen and pelvis — along with an EEG that measures brain waves and tests of her blood and spinal fluid that were sent to the Mayo Clinic for analysis — turned up no signs of a tumor, infection or encephalitis.Eight days after the odd behavior started it was as though “someone had flipped a switch,” her mother recalled. Erin was back to her old self but remembered little of what had happened. After a few nights of insomnia, her sleep pattern returned to normal.
This time Erin did not have strep. “She woke up fine,” but a few hours later her behavior changed abruptly and the sleep marathon began, Kristen recalled. Doctors, who were again concerned about encephalitis, admitted her and found no sign of the disease. “She couldn’t follow the simplest instructions,” Kristen remembered. “I would tell her to take a shower and walk in and find her lying on the floor of the bathroom, her feet propped up on the toilet.”Her personality change was unnerving and her uncharacteristic defiance sometimes embarrassing. She would “tell the hospital people to get out of her room,” her mother remembered. Once she tried to pull out her IVs.
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