Alana Tiller has around 3 per cent vision 'on a good day' and wouldn't change it. She's among young advocates hoping for change in the way people talk about vision impairments.
Alana Tiller and Matt De Gruchy live with vision impairments, and say it has shaped their life in a positive way.Advocates are calling for greater awareness of what it is like to live with vision impairments and for the avoidance of stereotyping.She also lives with Oculocutaneous albinism, which often causes progressive vision loss.Despite the challenges this brings, the psychological sciences student is clear; she does not want to be "cured".
While many assume people living with disability would prefer to be "cured", University of South Australia associate professor Caroline Ellison said attitudes like Ms Tiller's were common. "People live with impairments, people live with difference and diversity and people's bodies do different things, but whether or not they have a disability is about society and the barriers and challenges that we impose," she said."It's loaded because it sends a message that living with difference – living with a body that does things differently, living with a body that needs adjustments, needs society to be inclusive – is a bad thing," she said.
"I really did shut down, I really tried to hide my disability from everyone, except for my initial family and maybe one or two close friends," he said."Being legally blind or having low vision changed my life in a profound, better way," he said.
Cure Matt De Gruchy Alana Tiller Caroline Ellison Vision Impairment Ability Disability
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