Maya McDowell explains what its like being a 24-year-old living with narcolepsy, a condition that took her doctors years to diagnose.
is characterized by excessive daytime sleepiness without cataplexy, which is the sudden loss of muscle tone when a person is awake. This can lead to weakness and a loss of voluntary muscle control.
Instead, I’ve fallen asleep in the middle of an exam, at a stoplight in my car, during a meeting a work, and in other public places where 1. It’s not socially acceptable to be sleeping and 2. I absolutely do not want to be checked out mentally and 3.
A daily routine that comes naturally for most people is tough for me to get through, which is both disheartening and frustrating. Quite frankly, it’s exhausting being this exhausted.I could sleep more than 12 hours and still wake up feeling tired. According to the, narcolepsy affects the brain’s ability to control sleep-wake cycles. I fall asleep as quickly as 30 seconds, and because of the disorder, I enter REM sleep almost immediately.
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