When her partner of 35 years got dementia, Anne used her heartbreak to help others

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When her partner of 35 years got dementia, Anne used her heartbreak to help others
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Edie was only in her 50s when she got diagnosed with dementia. Together with her partner, Anne, they decided to make the most of life, and give back. This is their story. MyAustralia

At the time she was diagnosed, she was working as a driving instructor, but her diagnosis forced her to stop. “I remember one night after she was diagnosed we were in the bedroom and she was getting undressed and she said ‘I may as well be dead’.”The couple on the Hawkesbury River in the summer of 1985.

After her diagnosis, Edie made several national and international presentations advocating about living well with dementia and raising awareness of the help that is available Australia-wide. “He later told me that if I ever needed to come into care that they would find a double room for us,” Anne told the Royal Commission.

In its most recent initiative, Bigger Hearts successfully campaigned for a small grant distributed by Dementia Australia to kickstart a dementia sensory trail in Ballarat’s Woowookarung Regional Park. Parks Victoria’s Alex Schipperen said Anne’s experience as a carer has been invaluable during the planning of the trail.

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