Jim Mills spent his final days battling bureaucracy — now his family wants to make sure no-one else falls through the cracks.
The regional railway worker loved the St Kilda Football Club, a cold beer, and said yes to any dare that would come his way.
Mr Mills worked on the railways around Australia, and was living in Perth when he called Ms Adams in 2010."They adored him," she said.A few months later, he was diagnosed with brain cancer and given a prognosis of 12 months to live.Mr Mills's family said he received NDIS funding for his vision impairment, and around April 2023, used this funding to receive palliative care at a local assisted-living facility.
"He was scared it would get pulled again. And he'd rather pass away than go into hospital," Ms Adams said."He went peacefully. He was at home," Ms Adams said. "It highlighted the gaps for people who are under the age of 66 not being able to access My Aged Care or other palliative care services, and also the fact that there is a lot less access to palliative care services in the regions."
"It can be complex the health workforce in the area and the availability to provide support in the preferred setting of care," she said. They said the NDIS was designed to complement, not replace, mainstream services that the states and territories provided, such as the health system, which was responsible for palliative care.
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