Woman with rare disease travels 4,000 miles for life-saving surgery

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Woman with rare disease travels 4,000 miles for life-saving surgery
WomanRare DiseaseSurgery
  • 📰 DailyMailUK
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A woman with a rare disease that causes thousands of life-threatening tumors to grow all over her body traveled 4,000 miles for surgery to remove the growths that would allow her to breathe, eat, talk and walk.

A woman with a rare disease that causes thousands of life-threatening tumors to grow all over her body traveled 4,000 miles for surgery to remove the growths that would allow her to breathe, eat, talk and walk. Charmaine Sahadeo, 42, from Chaguanas, Trinidad, suffers from the rare condition NF-1 neurofibromatosis. Ms Sahadeo has growths on her scalp, in her mouth, all over her face, arms, legs, buttocks, breasts and on her genital region.

The tumors are almost entirely blocking her nose, making it almost impossible to breathe. A large mass on her leg means she can't walk more than a few steps at a time and must adjust the lumps in order to sit and urinate. A tumor growing in her mouth - which she named 'Frank' - makes it hard for the mom-of-two to eat and tal

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