The federal government last year added the cancer to its list of covered conditions linked to the World Trade Center attacks of Sept. 11. That decision has not been enacted, leaving women with 9/11-linked uterine cancer in limbo
Health care researchers say this bias continues to haunt the program. Aside from the delay in including uterine cancer, female first responders and survivors with other illnesses that usually primarily affect women, likeThis kind of gender bias in data collection and analysis is systemic in health and science, says Irene Aninye, chief science officer at the“The people making the decisions to open and close the doors, they don’t have the data that they need,” Aninye says.
research articles on the topic collected by the CDC are centered on women. Seven of them focus on pregnancy.Malkentzos has had two recurrences of her cancer. Over the years, she has needed chemotherapy, radiation, and surgeries, none of which were covered by the government. Because it’s not covered by the health program, she’s also ineligible for up to $250,000 in federal victim compensation for people with 9/11-related cancer.
Entry into the WTCHP is the golden ticket to get a 9/11-related illness covered and treated by the federal government — everything from asthma to PTSD to most cancers.
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